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Had to stop Big 3, ototoxicity and switching pulmonologists
MAC & Bronchiectasis | Last Active: 1 day ago | Replies (25)Comment receiving replies
thanks for asking. 2nd Doc is looking at a CT scan done last week and comparing it to scans from 2018-2022 (plus one in January 2025) and saying in one area of the left lung the airways are so dilated and there is so much mucous that that part of the lung is essentially non-functional. What I don't know, b/c it was a new patient appt and the time flew, is whether that is caused by the bronchiectasis I've had since 2018 -- and/or the MAC infection I was diagnosed with in October 2024. I also don't know why my 1st pulmonologist (at a hospital that is part of the bronchiectasis care center network) who has these scans at his disposal has never ever commented on the marked progression that the second doc has noticed.
Replies to "thanks for asking. 2nd Doc is looking at a CT scan done last week and comparing..."
May I ask what your symptoms are? Do you have shortness of breath or a lot of coughing or maybe you feel fine? I'm asking because I had the same experience with side effects including ototoxicity and also neuropathy and I had to quit the big 3 a bit early at 14 mos. It was confimed a few months later that the MAC was back and I was put on another drug therapy that I also couldn't tolerate. So now my ID doctor said I can watch and wait at this point and that my CTs do not indicate severe bronchiectasis or any progression. I don't really have any symptoms and am doing airway clearance nebbing saline and using a vest both twice a day. It's scary that people are getting so many conflicting opinions from their docs. It makes me wonder about mine. Getting another CT next week so I'll be interested to see what they say after that.
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Nilunn - Have you had a Ventilation-perfusion (V/Q) Scan? If not you, might want you inquire about one