← Return to Has anyone found a treatment that helps with peripheral neuropathy?

Discussion
Comment receiving replies
Profile picture for putsy @putsy

Well I got my letter from the Mayo Neurologist dept. They did a “deep dive” into my medical records. I had hoped that Mayo , since they have an extensive research, I had hoped that they could provide some new research treatments. The response was due to patient capacity and that they couldn’t offer any other treatments than what I am already doing. ☹️
So I am on my own. !
What is my personal treatment : I have left leg and left foot neuropathy. ( However there are many types of Neuropothathy). I have tingling sensation , easily irratedq by pants , socks, shoes, numbness down outer thigh, outside of leg calf, around the kneecap, around the ankle bone, and diminishing sandy feeling bottom of foot under toes and along right side of left foot. My personal daily health plan. AM. Alternating days of Physical therap exercises, yoga exercises, TENS unit application ( pads in proper place), Antiflamitory fruit, Greek yogurt, cinnamon, ginger, protein powder, apple cider vinegar, etc. shake, pils: D3, multivitamin, Tumeric, Krill oil,, multi vitam B vitamin. All of good quality. ( no synthetic ). ( there is a difference !). Deep tissue massage. ( look for a massage therapist trained in deep tissue massage). It’s not Swedish massage!). It can be painful sometimes). Accupuncture for pain in back ( after extensive failed back surgery). On going Pysical therapy, magnesium lotion on leg and whole foot.
It’s time consuming. I have to balance my daily life activities and what I do for my neuropathy.
I’m currently researching studies about the Sural nerve and Tibial nerve entrapment. Thanks for listening. Watch out for scams and poor quality ingredients.

Jump to this post


Replies to "Well I got my letter from the Mayo Neurologist dept. They did a “deep dive” into..."

Which Mayo were you trying to get into? I was discouraged to read your post as I'm also waiting to hear from the Mayo Clinic in Rochester to see if I can get an appointment.

@putsy it sounds to me like you are doing everything, and more to help yourself. Mayo is always overwhelmed so I’m not surprised you couldn’t get an appointment. It is very hard when you have gone through all their “hoops” and they turn you down.

There is no cure, no magic bullet that will cure Neuropathy. Those of us with Neuropathy are in pain. There are scammers out there who prey on us. They try to sell us lotions, potions, and gadgets that don’t work.

I’ve had Polyneuropathy for 10 years as a result of an autoimmune disease. There is one supplement I take that helps a little it’s Alpha-Lipoic Acid (ALA) I take 600mg. twice a day.

I wish you the best!

You are trying so many things ….alas to no avail you did not however mention reflexology, I am experiencing some relieve using that modality 2x a month and a massage gun nightly. I quit taking the gabepentine just masks the nerves for me, I want to feel my feet sorry but neurologist are now a waste for me, I still use turmeric (helps with inflammation) and vitamins as well. Good luck to you !

Hi
TRIED The Nerve Doctors ON YOUTUBE?
indeed it seems you have done everything except the ONE thing The Nerve Doctors recommend - synthetic B1. Yes, natural is always best. Except this. The female dr. explained why. The natural B1 is water soluble. The synthetic is fat soluble and is able to reach the Nerve through the fatty shield. You have come this far why not give them a try. They are on YouTube and Nuphoria. com.. I recommend YouTube first. Her discussions are convincing.