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Thank you Cheyne for your story, you have definitely been on a life ride. I love your attitude and your strength. Stories like this give hope to others and me. I curious of why you stopped excessive exercise, and what do you mean by excessive. I exercise almost everyday, walking 5k, doing yoga and some weight work for upper and lower body. Also, I agree with the artificial sweeteners that they are dangerous, what about stevia that is made from a real plant, would a little of that be OK. All the best to you, enjoy every minute.

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Replies to "Thank you Cheyne for your story, you have definitely been on a life ride. I love..."

Hi,
Excessive, worked until I dropped, unable to shower myself after. Unfortunately I was a workaholic. Now days being retired and now in a retirement center I struggle to find enough work! But I still can't stop the habit of a life time when I taste work. I guess I'm addicted to the pain. I'm not able to take in enough fluid to counter the loss through sweat.
For a while I used Stevia but the after taste put me off and the alternative to that is under investigation by the FDA, sorry don't remember the name but it didn't have the after taste and I believe in small amounts it could be OK.
With CKD, IBS, Diabetes type 2 uncontrollable, Sky high BP uncontrolled, an enlarged heart all wraped up with Autonomic polyneuropathy, CKD with GFR38 is the least of my worries.
I react seriously bad to medications and my Dr's are just starting to understand what it does to me, with confirmation from a long suffering wife.
Being untreated but comfortable is better than being treated an out of control and aggressive in my mind. It relieves pressure on those around me and I feel better for it. The change is obvious when I stop medication. I believe it is possible and I have read a medical report pertaining to such rear problems with medication. For me it is yet to be medically confirmed that I have this problem. Likely Dysautonomia has a hand in it as I never had this problem before AKD from Champylobacter. Until then I find my own way through the trials and tribulations sent my way, I just keep dealing with whatever flavour of the day is dished up for me. It is impossible to know what each day will bring for me with Dysautonomia getting involved. I stay strong because there is always hope around the corner of better to come.
Cheers