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Hi Janis, I was diagnosed with M. Abscessus in Nov 2024. I'm so sorry, It's scary. How is he doing? I am so glad you are taking him to NJH. I was there in May for 12 days. Just a few things: I installed an ultrafiltration system at my sink for drinking, cooking, and washing fruits and vegies. I also drink bottled spring water. I installed a shower head that works really slick, where the shower head pops open and it drains-really easy, so no water collects in shower head for bacteria and mold to grow. Material is also antimicrobial. I may add a filter but for now just not taking hot steamy showers-and I keep the shower door open, and bathroom ventilated. Eating and drinking can also be problematic, but not for everyone and he will be tested at NJH. When gardening, I also wear a mask. At this point, I am hopeful that research will continue and someday soon the treatment will be much improved. This site is wonderful! It's a great source for information. I have learned so much on this site.

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Replies to "Hi Janis, I was diagnosed with M. Abscessus in Nov 2024. I'm so sorry, It's scary...."

Hi kathyjjb, thank you for your note! Can you tell me the name of your ultra filtration system at your sink? Is it under-the -sink or on the countertop? I would like to get one. I saw online the shower head that you have. I have been looking for one that has a 0.2 micron filter; the ones that Dr. John Falkinham suggests are more for commercial application in hospitals, ie. Pall Medical, AquaMedix & Aqua Tools. I will keep looking.