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Multiple System Atrophy (MSA): How to discuss with family?
Brain & Nervous System | Last Active: Sep 16 2:27pm | Replies (10)Comment receiving replies
What an excellent suggestion! I have told the family of my diagnosis MSA C & P. Yes there have been many questions. When I didn't know the answers, I message my dr, and she gives me the answers I need. But it's the next step that I face the unknown. Their accepting my MSA and not becoming paralyzed with it. As an example: Already my middle son thinks he needs to relocate from the San Fransisco Bay Area to Southern CA in the San Diego area. He has a daughter that is with him 50% of the time. I don't want him to leave her because of me. I do not know how I can deal with the aftermath of the initial conversation I had with them. I also feel bad about giving them such bad news. How do others handle this situation?
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Hello (@ripley77) Dyanne,
You are asking some very important and thoughtful questions. I am glad to know that you have already begun the conversation with your family about your diagnosis. It shows a lot of courage as you face this challenging time in your life.
You need to be aware that once you provide your family with your situation, you must allow them to make the decisions that they are most comfortable with. You will undoubtedly need support in the years to come, and it is important that you allow others to help you. Also, as adults, they need to be free to make their own decisions. I understand that you would like to control the aftermath of this discussion, but generally that is not in our power. As you have you have presented your situation to your children, you now need to allow them to act upon the information in a way that they are most comfortable.
Now, regarding your middle son. I assume that his desire to move is so that he can be closer to you and offer you any help that you need. As you are concerned about his moving away from his daughter, why not ask him how he will arrange to see his daughter after this move. This will help to continue the conversation and also show your concern and your care for his welfare and that of his daughter's.
Will you continue to post and let me know how you and your family are doing?