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Pari eRapid/eFlow first impressions

MAC & Bronchiectasis | Last Active: Nov 1 6:24pm | Replies (85)

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Profile picture for Sue, Volunteer Mentor @sueinmn

Interesting - I winter amongst the North American cane fields (US Mexico border) and cane burning is one of my worst times - have had to bow out of outdoor activities on low pressure days when the smoke lingers and retreat to filtered air indoors.

Symbicort (or the generic) is my go-to inhaler twice a day always, and up to 4 times a day in a flare. My pulmo actually discourages use of levalbuterol inhalers - says if my wheezing/coughing/shortness of breath is that bad, to neb levalbuterol and budesonide 2-4 times a day in addition to the Symbicort. At our clinic (my kids and grandkids see the same docs, and we have varying severity of asthma plus my bronchiectasis) here is the asthma protocol -
Mild - requiring meds less than 5X per week or only during illness or heavy exertion - SABA (short-acting beta agonist) like albuterol or levalbuterol inhaler as needed
Moderate - using meds more than 5X per week or with mild exertion -
one of the following combo long-acting beta agonist plus inhaled corticosteroid - LABA/ICS like Symbicort OR long-acting beta agonist plus long-acting muscarinic agent - LABA/LAMA like Anoro Ellipta
Moderately severe - add the other "leg" of the trio above either ICS or LAMA - alone or in a 3-part combination like Trelegy
Severe - the above plus possible oral steroids and biologic medications.

Due to hassles with my health insurance, last winter I ran out of Symbicort for a few weeks. It answered my question as to how effective it is for me - my sob increased while I was off it, and my mucus really increased. I think in my case it truly points to the inflammation being a factor in mucus production.

I hope you are enjoying your travels. Since it seems to be effective for you, if it is offered, you may want to consider continuing Symbicort in the long term.

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Replies to "Interesting - I winter amongst the North American cane fields (US Mexico border) and cane burning..."

Thank you for that informative response, Sue. I have been on a trial relocation back here, but find it hard to seriously contemplate a move considering my sob issues since being over here...and it isn't even summer yet! While in Perth i have never had a problem with my asthma that in my mind justified the ongoing use of Symbicort, much to the despair of the respiratory specialists...but when using it (as I think I have explained before) I felt no different). I know your protocol is/was to use it occasionally. I am not sure that in 2 weeks it would be sufficient to affect a change in mucus volume in any case, but it makes sense that the inflammation caused by asthma may increase the mucus (which may be why the specialists get upset and call me non compliant)...but I still have in my mind that using Symbicort when I don't have sob/asthma symptoms is unnecessary. I did check this fact xith my GP who deals a lot with asthma before I left Perth and he agreed that unless I had symptoms that Symbicort was not going to help le or assist my Be. (Although he is not a specialist...) I just wish they would explain more, so that I can understand their justification.

I really appreciate your input, Sue.