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Dealing with inclusion body myositis: Want to connect with others
Bones, Joints & Muscles | Last Active: Jan 26, 2024 | Replies (19)Comment receiving replies
That’s so great! My granddaughter has a different type of Myositis, and I’m hoping she will be dancing, too! She had been in remission but a recent flare has caused thigh muscle problems.
How’s your friend with balance issues on memantine? On the dementia care group you said she had been in despair, but dancing now? Sounds like they found the right answer!
Replies to "That’s so great! My granddaughter has a different type of Myositis, and I’m hoping she will..."
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Thanks. The despair is gone with the returned mobility on Memantine. Things are forward to normal (she sings and plays guitar). I have not inquired if there is alsheimers or any other symptoms. Just happy to have her back.
My myositis friend has great life force and outlook, but her atrophying muscles have het wheelchair bound. She is a talented painter and photographer, and is working at it feverishly ( no pun ). How old is your granddaughter? I hope she rebounds.🙏❤️