What would you do? Medication.

Posted by babs10 @babs10, Feb 12, 2024

Hi, I am interested in lay people opinions given I have received so much conflicting advice from MDs. It’s astounding and I’m sure I am not the only person who is confused and wary about any decision I make.

I am 68 years old and have significant OP – my T score is a -3.5. I was diagnosed in October. I knew I was genetically predisposed so have regularly exercised since my 20s and have maintained a healthy diet. Since the diagnosis, I have upped the frequency of weight lifting and the use of resistance bands and I am doing what has been advised in terms of diet and supplements.

My Plan D insurance will only cover Prolia and Forteo. I have decided against Prolia and am reluctant to start Forteo. Backing up a little, I enjoy adventurous vacations such bicycle trips and strenuous, long hikes. In September, for example, I hiked a portion of the Camino de Santiago. While training, I slipped and fell three times on big rocks and didn’t break anything. Last year, I took a bicycle trip in Europe. I tried out an electric bike which got away from me and I took a hard fall – it hurt, but no fractures. I know that my bone density is low as reflected by my low T score, but I also believe the quality of my bones is good, and the DEXA score is only part of the equation. One of my doctors said, “Oh, you did your own DEXA test.”

Like everyone, I want to avoid a fracture more than anything so I am willing to consider Forteo, but here is my concern: Is there a chance I might hurt the integrity of my bones by going on it? Might I inadvertently worsen my own situation by taking medication just to improve my DEXA score?

I also want a life plan that needs to last maybe 30 more years. We take a medication for a year or two, then switch to another medication for a year or two. Then what?? None of the MDs I have talked to have had a satisfactory answer. Maybe they are waiting for new drugs to hit the market.

I’m really struggling with the decision. I know I am the only person who can make it, and I will have to be responsible for the outcome, but I would really like to hear what thoughts others have. Thanks so much - any input is welcome.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for mpc1 @mpc1

I have a similar story, same age and lumbar spine T score -3.4. My hips are -.6 femur and -1.5 neck. TBS shows borderline low quality. My Mom had multiple spine fractures and never broke a hip. She lived to 94, took boniva briefly but did not tolerate it. I am hoping to start low dose BHRT later this week after my CAC results are available. I have avoided meds except for 18 months on evista when insurance changed and too expensive, 18-20 years ago. My goal is to maintain strength and balance and avoid meds as long as possible. Almost all my relatives lived into their 90’s. Good luck!

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@mpc1, How old-ish are you? (wondering about the BHRT which I didn't pursue b/c of that women's health initiative which ended up being wrong advice)

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Profile picture for dvargo @dvargo

Correct. Bone quality is more important then bone density.

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@dvargo, This is such a good presentation to watch with that in mind!

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Profile picture for babs10 @babs10

@mpc1, How old-ish are you? (wondering about the BHRT which I didn't pursue b/c of that women's health initiative which ended up being wrong advice)

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68 in three weeks. Had calcium score done today and it was 0, so I will begin my BHRT soon.

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mpc1, thanks for the reply. How did you find a doctor or practitioner to prescribe BHRT?? I'm interested in it but am repeatedly told I'm too old. I'm 69.

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Profile picture for babs10 @babs10

mpc1, thanks for the reply. How did you find a doctor or practitioner to prescribe BHRT?? I'm interested in it but am repeatedly told I'm too old. I'm 69.

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I started bhrt last year at 76. I went to a functional medicine provider. Bone health was not my primary reason although I was hoping that it would offer something to the drugs i take.

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Profile picture for chuckster1957 @chuckster1957

I'm supposed to get a reclast infusion and I'm concerned about the side effects. My T score is -2.6 spine.

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Chuckster,
How old are you? Is reclast the first medication you've been
prescribed?

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I'm currently on ADT therapy for prostate cancer and will be for another year and it seems to have caused osteoporosis. I'm 68.

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Profile picture for babs10 @babs10

I have heard of the Strontium Citrate, but know nothing about it. I gather this would be in place of medicine. Is that the decision - S.C. or medication?

OP is such a complicated problem, isn't it? You feel great until you fracture. Ugh.

I'm looking for a personal trainer, but so far haven't found anyone who knows anything about how to keep people with OP safe. I am going to call Medicare and see if they would cover PT for me for a bit. I can learn the exercises and do them myself if I have to, but a personal trainer would be so much better.

Thank you so much for your post, glojo.

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Have you asked your provider for a referral to
Pt?

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Profile picture for gravity3 @gravity3

I started bhrt last year at 76. I went to a functional medicine provider. Bone health was not my primary reason although I was hoping that it would offer something to the drugs i take.

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@gravity3, are you on any bone medications? I just started taking bioidentical estrogen with 40mcg Tymlos. Dizzy so far.

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