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Prostate Cancer | Last Active: Aug 21 7:59am | Replies (12)

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I am so sorry that you and your husband have to go through this ordeal and as a wife I understand you completely. I also understand not trusting medical community - they basically failed my husband TWICE regarding PC so please do not wait with treatment. Ask for Decipher and PSMA ASAP !
IDC is VERY aggressive. My husband has both - cribriform and IDC and and they were found in only one single core , 2 more samples 3+3 and the rest clear. Guess what , after waithing for 5 mos to get surgery done his gleaon was upgraded to 4+5 and IDC was the reason, not cribriform ! Not only that, cancer breached capsule so they found focal mini extensions. 😭 His pre-op PSA was 5.8 so do not pay attention to PSA - IDC and crbriform are aggressive and PSA does not have to correlate.
We had consultations with both the surgeon and radiation specialist and both confirmed that RP was the best choice since aggressive cancer asks for aggressive approach. I do not know what is your husband's age or how fit and healthy he is -that can be deciding factor also.

All in all - yes, do not trust anybody but follow your gut instinct and ask for fast treatment - do not delay for more than 2 or 3 mos , at most if at all possible.

Wishing you all the best and much better outcome than ours 🍀🍀🍀

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Replies to "I am so sorry that you and your husband have to go through this ordeal and..."

Thank you so much! The PSA seemed to throw everyone since it wasn’t high. I’m angry that he wasn’t fast tracked when it showed up on both sides of prostate and a really high volume of cancer. Surgery date is set for September 4th. He turns 69 on the 5th. Health is so so. Meds keep things in check for diabetes (no insulin) and HBP.