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Pari eRapid/eFlow first impressions
MAC & Bronchiectasis | Last Active: 19 hours ago | Replies (78)Comment receiving replies
Interesting, Sue. I seem to remember that while you don't produce the amount of mucus that I do you seem to have a similar mix of Be and asthma. I am currently on a trip from Perth and spending time in Queensland where I have had very scary sob all the way down
the coast. It seemed to be connected to sugar cane burning, high humidity, low cloud cover. Telephone consult with my GP had her guessing it was an asthma flair, which I don't recall ever having before in WA. She has put me on Symbicort 2puffs, 2xday for 2 weeks. This seems to be addressing the problem. I am hoping that the sob won't return when I stop the Symbicort. From memory you take the Symbicort on an ongoing basis before nebbing, don't you? I used to take the Ventolin puffer before nebbing, but have now swapped for the Symbicort...and may just continue with that while over here to prevent another attack. I know we have discussed LMP and I agree in finding what works for us individually.
I am still bringing up large volumes of mucus, and seem to, in recent months, only have an hour or two where I am not coughing and spitting...it is now seeming to impact much more on my life.
I am interested to hear peoples response to Pari eflow. ..I decided to have the Pari Trek shipped via a friend to Australia rather than the expense of the eflow...for this long overland trip.
I would be interested in your thoughts on the above, Sue.
Replies to "Interesting, Sue. I seem to remember that while you don't produce the amount of mucus that..."
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Interesting - I winter amongst the North American cane fields (US Mexico border) and cane burning is one of my worst times - have had to bow out of outdoor activities on low pressure days when the smoke lingers and retreat to filtered air indoors.
Symbicort (or the generic) is my go-to inhaler twice a day always, and up to 4 times a day in a flare. My pulmo actually discourages use of levalbuterol inhalers - says if my wheezing/coughing/shortness of breath is that bad, to neb levalbuterol and budesonide 2-4 times a day in addition to the Symbicort. At our clinic (my kids and grandkids see the same docs, and we have varying severity of asthma plus my bronchiectasis) here is the asthma protocol -
Mild - requiring meds less than 5X per week or only during illness or heavy exertion - SABA (short-acting beta agonist) like albuterol or levalbuterol inhaler as needed
Moderate - using meds more than 5X per week or with mild exertion -
one of the following combo long-acting beta agonist plus inhaled corticosteroid - LABA/ICS like Symbicort OR long-acting beta agonist plus long-acting muscarinic agent - LABA/LAMA like Anoro Ellipta
Moderately severe - add the other "leg" of the trio above either ICS or LAMA - alone or in a 3-part combination like Trelegy
Severe - the above plus possible oral steroids and biologic medications.
Due to hassles with my health insurance, last winter I ran out of Symbicort for a few weeks. It answered my question as to how effective it is for me - my sob increased while I was off it, and my mucus really increased. I think in my case it truly points to the inflammation being a factor in mucus production.
I hope you are enjoying your travels. Since it seems to be effective for you, if it is offered, you may want to consider continuing Symbicort in the long term.