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DiscussionMy Husband was newly diagnosed with Carcinoid Cancer
Neuroendocrine Tumors (NETs) | Last Active: Aug 14, 2017 | Replies (25)Comment receiving replies
Replies to "@heidilynn4 I am in a similar situation, with only surgery so far and fearful other small..."
He has never had symptoms of carcinoid syndrome yet so we are hopeful there are no tumors in his liver, as I have read that you only experience carcinoid syndrome from primary illeum tumors if it has also spread to your liver, since the liver breaks down the excess hormones that the carcinoids produce unless it is affected too. Good luck to you, I am hoping we can push Mayo to do a GA-68 scan too just for peace of mind, since it was found in his lymph nodes.