Since my diagnosis in 2002 at Mayo Clinic, I have had surgery to remove appendix, gallbladder, resection of my terminal ileium and right hemicolectomy (all in one surgery in 2008). After this I was started on Sandostatin and have been getting this injection every 28 days. I started on 20 mg. and have gone to 30 mg. recently. I have never had an octreoscan. I have blood work and CT scan and sometimes an MRI and a 24-hour urine collection about every 6 months. At diagnosis, I already had lymph node and liver mets and numerous small carcinoids in my large intestine - too numerous to remove. I can't say that I have had many "sick" days. I do have some trouble with diarrhea and gas and occasional flushing. I was hospitalized once for dehydration after a bout of the flu. About a year ago, a couple of tumors have shown up in my lungs. No one would know what I "carry" with me every day. I just take one day at a time and am grateful for every one.