← Return to Clofazamine and rifampacin

Discussion
gemini1956 avatar

Clofazamine and rifampacin

MAC & Bronchiectasis | Last Active: Sep 2, 2025 | Replies (15)

Comment receiving replies
Profile picture for susies215 @susies215

Dr wanted me on clofazamine but I have refused multiple times. Dr keeps saying it just causes a nice tan. That is not true according to my research. I’m not risking my skin turning gray or blackish. I am on Amikacin IV, Nuzyra oral and Sirturo oral. I have mycobacterium abscessus. Took me off Impenium and teflaro iv due to 24/7 nausea. I’m also dealing with advanced lung cancer and on chemo and immunotherapy. Good luck to you

Jump to this post


Replies to "Dr wanted me on clofazamine but I have refused multiple times. Dr keeps saying it just..."

Dear Susie,
I love the strength and resolve you’ve shown. I hope and truly believe you will stay strong and we must never forget what determination of the human spirit contributes to well-being AND healing……. people like you are still confounding science. Sending you and all of you on this journey positive wishes. 🤗