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Reclast: Poor Result...Next steps

Osteoporosis & Bone Health | Last Active: Sep 26, 2025 | Replies (35)

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Profile picture for beanieone @beanieone

Around 2017, after (I think) five Reclast infusions, I had a DEXA that indicated that my T-scores had improved somewhere into the stratosphere. My doc felt no additional Reclast infusions were indicated and this was pre-Tymlos/Evenity. So, new insurance company, new doc . . . and two years later my doc reads my DEXA and says that the 2017 scan must have been wrong (same machine, by the way) because a gain such as I had was pretty much impossible with Reclast and that my T-score was now back to that 2015 "normal". I really wasn't expecting much in the way of gains with Reclast as my doc told me it was just to keep things from deteriorating further so I was ecstatic.

It would be great if a doc sees something on a DEXA that looks abnormal/unusual, an additional scan could be ordered to verify. My doc told me that bone grows very slowly, so that should have been a trigger for the previous doc who didn't question the significant, and I mean significant, gains in the 2015-2017 DEXA numbers.

Why are we not entitled to a "second opinion" lab or diagnostic when we see squirrelly (no offense to squirrels) numbers or info on labs that look like they just don't belong? I think I finally found a doc that will listen . . . yay for me!

Hoping I don't fracture jumping down off my soapbox! Cheers, all!

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Replies to "Around 2017, after (I think) five Reclast infusions, I had a DEXA that indicated that my..."

That is exactly what I would like to find. I Dr. that listens! I keep saying I want to be a PARTICIPANT in my health care. Not a RECIPIENT. Good for you if you found somebody!!

@beanieone Since you went through 5 Reclast infusions, can I ask if you had any adverse side effects? I am now contemplating annual Reclast infusions instead of weekly Fosamax pills but am reading all kinds of scary side effects people have suffered, and continue to suffer with. I initially rejected any medication use but decided, if I could find something that helped and didn't make me regret my decision, I would give it a try. Any feedback would be greatly appreciated!!