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Profile picture for Sue, Volunteer Mentor @sueinmn

@njlynn - For what it's worth - as a person who is on her fourth & fifth pulmonologists (a team) - but all within the same network - I say go with your gut feeling. When I was "fired" by my first pulmo I was devastated, but it turned out to be a blessing as it got me into a better clinic, where I just had to "wait in line" for the top team. Now my Bronchiectasis is stable, as is my asthma, and my sleep apnea and vocal chord issues are finally being addressed (a first after over 40 years of struggles.)

Usually, my opinion is that if you are at one of the centers of excellence, it isn't necessary to consult with another. But in your situation, with wildly different opinions AND your need to back off on medications, I would go with the best. And I would make sure they know beforehand that you have differing opinions behind your concerns.

Good luck, I hope you find a regimen that you can handle.

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Replies to "@njlynn - For what it's worth - as a person who is on her fourth &..."

This is sage advice. I really appreciate the clear rationale re: the different opinions and me having to drop the medications, and the point about letting National Jewish know beforehand what the status is.