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When my Endo talked with Nuclear Med, at my insistence, and Nuclear Med recommended RAI I had 90 mCi in early 6/2025. I've had a follow-up Ultrasound post TT and it showed no concerns.
My symptoms since Total Thyroidectomy 2/2025:
1. Daily constipation (not from too little water. I've always had to drink 2+ liters daily due to being prone to kidney stones)
2. Dry skin and dry flaky patches on my face
3. Severe fatigue (I've had to reduce my hours from 36 to 20 hrs/wk.), decreased cardio fitness level and cardio recovery worse (I have to take several short rest breaks during a task that I didn't have to before TT and break task completion up over days instead of performing in a day).
4. Short of breath doing mild to moderate intensity things i.e. walking up 16 stair steps, taking a shower and getting dress. (In other words, doing things I did without any difficulty before total thyroidectomy). If I do resistance exercise, I'm on the sofa for hours afterwards recuperating.
5. Thick brain fog that comes on quickly making it difficult to form sentences, difficulty carry on long conversations, difficulty with analytical thinking, making errors in writing leaving out words, grammatical errors, word finding difficulty and spelling errors. It feels if I have dementia, but it is transient and seems to come on after having to use my brain to think for a period of time and then improves with a break in not having to think too much, but instead doing automatic already learned tasks.
6. Feeling hot then cold within a few seconds
7. Bending down to pick up something and feeling light headed when coming back up.
8. Pre diabetes
I was diagnosed with Invasive Follicular variant of Papillary Thyroid Carcinoma and no spread was found to Lymph nodes.
I've been to a hematologist very recently who tested Ferritin that was normal, Iron that was lower end of normal, Iron Binding Capacity at very low end of normal and % Saturation that was abnormal low. The hematologist only addressed the ferritin result saying that it was the best marker for total body iron stores and because it was normal he did not think iron was the cause of my severe fatigue. I also saw a cardiologist very recently who said that my symptoms could be all from post-thyroidectomy and that until that was fixed it would be difficult to tease out cardiac issues. Otherwise, my previous cardio work-up results are good or under control.

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Replies to "When my Endo talked with Nuclear Med, at my insistence, and Nuclear Med recommended RAI I..."

@ptc61
What is your TSH level now?

What is your current iron TIBC and are you taking any iron supplements?

I had a lobectomy due to 2.5 cm suspicious nodule that was causing swallowing and speaking issues and wanted it removed (in my 50s) because my sister had thyroid cancer in her 20s and a full thyroidectomy. They found a micro cancer and no spread to lymph nodes so removal of lobe was sufficient (no RAI needed) plus levothyroxine (first 88 mcg then 100 mcg) to get my TSH below 2.0. It fluctuates between 0.5-1.75 now. I felt like a zombie after lobectomy when my TSH crept up to 4.5-5. I am now considered hypothyroid plus have confirmed Hashimoto’s (my mom had this, too).

I had many of your symptoms and also had iron deficiency before lobectomy and things improved once my iron and thyroid issues were addressed (took Polysaccharide Iron Complex Ferrex which is better and more gentle on gastrointestinal system). I am not a big meat eater and more of a vegetarian and diet plus heavy menstrual cycles caused my iron deficiency (had d&c to remove 3 polyps and they put in an IUD to reduce bleeding).
https://www.drugs.com/mtm/iron-polysaccharide.html

@ptc61
Many of your symptoms sound like hypothyroidism and iron deficiency and you should keep working on the right medications and supplements to help bring your TSH level down and improve T3 and T4 plus iron TIBC. Low TIBC (Total Iron Binding Capacity) can be caused by several factors, most commonly chronic inflammation, liver disease, malnutrition, or certain genetic conditions. It suggests that the body's ability to transport iron is reduced, even if iron levels are normal.