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DiscussionAre Endocrinologist the best MDs to treat Thyroid Carcinoma patients
Thyroid Cancer | Last Active: Aug 21 8:56pm | Replies (16)Comment receiving replies
Replies to "When my Endo talked with Nuclear Med, at my insistence, and Nuclear Med recommended RAI I..."
@ptc61
Many of your symptoms sound like hypothyroidism and iron deficiency and you should keep working on the right medications and supplements to help bring your TSH level down and improve T3 and T4 plus iron TIBC. Low TIBC (Total Iron Binding Capacity) can be caused by several factors, most commonly chronic inflammation, liver disease, malnutrition, or certain genetic conditions. It suggests that the body's ability to transport iron is reduced, even if iron levels are normal.
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@ptc61
What is your TSH level now?
What is your current iron TIBC and are you taking any iron supplements?
I had a lobectomy due to 2.5 cm suspicious nodule that was causing swallowing and speaking issues and wanted it removed (in my 50s) because my sister had thyroid cancer in her 20s and a full thyroidectomy. They found a micro cancer and no spread to lymph nodes so removal of lobe was sufficient (no RAI needed) plus levothyroxine (first 88 mcg then 100 mcg) to get my TSH below 2.0. It fluctuates between 0.5-1.75 now. I felt like a zombie after lobectomy when my TSH crept up to 4.5-5. I am now considered hypothyroid plus have confirmed Hashimoto’s (my mom had this, too).
I had many of your symptoms and also had iron deficiency before lobectomy and things improved once my iron and thyroid issues were addressed (took Polysaccharide Iron Complex Ferrex which is better and more gentle on gastrointestinal system). I am not a big meat eater and more of a vegetarian and diet plus heavy menstrual cycles caused my iron deficiency (had d&c to remove 3 polyps and they put in an IUD to reduce bleeding).
https://www.drugs.com/mtm/iron-polysaccharide.html