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DiscussionAre Endocrinologist the best MDs to treat Thyroid Carcinoma patients
Thyroid Cancer | Last Active: Aug 21 8:56pm | Replies (16)Comment receiving replies
Replies to "@ptc61 Endocrinologists just help to monitor bloodwork and hormones plus prescribe medications for treatment. I’m not..."
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When my Endo talked with Nuclear Med, at my insistence, and Nuclear Med recommended RAI I had 90 mCi in early 6/2025. I've had a follow-up Ultrasound post TT and it showed no concerns.
My symptoms since Total Thyroidectomy 2/2025:
1. Daily constipation (not from too little water. I've always had to drink 2+ liters daily due to being prone to kidney stones)
2. Dry skin and dry flaky patches on my face
3. Severe fatigue (I've had to reduce my hours from 36 to 20 hrs/wk.), decreased cardio fitness level and cardio recovery worse (I have to take several short rest breaks during a task that I didn't have to before TT and break task completion up over days instead of performing in a day).
4. Short of breath doing mild to moderate intensity things i.e. walking up 16 stair steps, taking a shower and getting dress. (In other words, doing things I did without any difficulty before total thyroidectomy). If I do resistance exercise, I'm on the sofa for hours afterwards recuperating.
5. Thick brain fog that comes on quickly making it difficult to form sentences, difficulty carry on long conversations, difficulty with analytical thinking, making errors in writing leaving out words, grammatical errors, word finding difficulty and spelling errors. It feels if I have dementia, but it is transient and seems to come on after having to use my brain to think for a period of time and then improves with a break in not having to think too much, but instead doing automatic already learned tasks.
6. Feeling hot then cold within a few seconds
7. Bending down to pick up something and feeling light headed when coming back up.
8. Pre diabetes
I was diagnosed with Invasive Follicular variant of Papillary Thyroid Carcinoma and no spread was found to Lymph nodes.
I've been to a hematologist very recently who tested Ferritin that was normal, Iron that was lower end of normal, Iron Binding Capacity at very low end of normal and % Saturation that was abnormal low. The hematologist only addressed the ferritin result saying that it was the best marker for total body iron stores and because it was normal he did not think iron was the cause of my severe fatigue. I also saw a cardiologist very recently who said that my symptoms could be all from post-thyroidectomy and that until that was fixed it would be difficult to tease out cardiac issues. Otherwise, my previous cardio work-up results are good or under control.