Connect
← Return to Living with Neuropathy - Welcome to the group
Discussion
Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 12 hours ago | Replies (6621)Comment receiving replies
Hi I am new to this group and I have tried to find the answer but haven't so I think you can help me. I have not been diagnosed with neuropathy because I can't get my MD who I have gone to over 20 years to listen to me about really believing I have it. My feet burn like "hell" and hurt. I have tried every ointment from lidocaine to voltaren to the Australian guys to magnesium oil covered with Vicks....really! Now the pain has moved up my calves in to my thighs and now my hip area. When I googled neuropathy it sounds like this so my question is if my MD doesn't listen where do I go I'm on Medicare 77 years old.
Replies to "Hi I am new to this group and I have tried to find the answer but..."
Yes, burning feet neuropathy almost runs our lives. We tell drs’ & they don’t know what to do.
Traveling for me isn’t possible as I have to be able to cool my feet down.
I found ice socks from Amazon helps stop burning at bedtime. I have 4 pair & as they thaw out, I change out for another frozen pair. Some brands are flimsy & can rip so I have my favorites. Also keep a large water bottle frozen & during daytime I roll the bottle under my feet.
Hope this helps a bit.
Your doctor is an idiot and not specialised in pain. I have similar symptoms and have tried all the conventional pills. Am now consulting a Homeopath and trying to get hold of creams - Venagel by Vogel trying for this weekend. Pain is driving me mad and recent heatwaves - I'm in the U.K. have made pain worse - . There are many pills in conventional medicine - see a neuropathic specialist - but they stopped me thinking and gave me brain fog. I've also tried acupuncture to no avail. In the evening I sit with feet in a bowl of very cold water, helps a little, and take codeine, which gives me 3-4 hours sleep but severe constipation (been prescribed Laxidol which works). Keep trying. Good luck. barb.simpson
Connect
Hi Lynda @lyndahamilton, Welcome to Connect. You are not alone with the burning feet. I'm really sorry to hear that you have a doctor that doesn't listen and you haven't found any help. Here's some information from Mayo Clinic on how neuropathy is diagnosed and treated - https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/diagnosis-treatment/drc-20352067. If possible, I would try and get an appointment with a neurologist.
There are quite a few discussions on burning feet if you want to scan through them. Here is a link with the list of discussions - https://connect.mayoclinic.org/search/discussions/?search=burning%20feet.
The Foundation for Peripheral Neuropathy has a list of doctors for neuropathy by state if you want to see if there is one close - https://www.foundationforpn.org/find-a-doctor/.