← Return to Newly diagnosed invasive ductal and lobular in right breast

Discussion
Comment receiving replies
Profile picture for cathcath @cathcath

Initially, it was thought that I had lobular cancer. If you check the research, the rate of return of that cancer is not 50-70%. It is commonly 12% recurrence or less. The testing done on my tumor initially showed that I had a 98-99.5% of cure and less than 4% chance of recurrence. My oncologist told me that my results were not uncommon for lobular. What happens with lobular with a mastectomy is that it may return in your bones, liver or stomach. They don't catch it as quickly because there is no breast tissue for it to return to. That's how my oncologist explained it to me. If you have access to another oncologist, I suggest that you pick their brain regarding recurrence. and what you need to do to stay on top of any potential recurrence. Also, an Oncotype test will tell your oncologist whether chemo will help and if so, how much, as well as your specific rate of recurrence, based on your tissue. Best of luck to you!

Jump to this post


Replies to "Initially, it was thought that I had lobular cancer. If you check the research, the rate..."

I had the same sort of contradiction on percentages of return. One oncologist said guaranteed 82% return if I didn't take Tamoxifen. Next doctor said more like 5% chance to return, 10% max. I do my own research now, and I read this site daily. Lots of information and I see many upbeat successful stories from us real people. There's more unlucky stories than lucky but that goes to reason, and I take that into account. People who didn't have any trouble many times don't go looking for a site like this. It's still a great comfort to me.