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PRRT Question

Neuroendocrine Tumors (NETs) | Last Active: Oct 3 11:50am | Replies (27)

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PRRT Update:
Today I got the absolute best news😁 Had my PRRT follow-up appt with the Radiologists. After reviewing both of my surgery path reports & all scans, all Drs agree the one small spot in lower colon/vaginal cuff is too small to treat right now. But if/when it grows I’ve been screened & can go immediately to PRRT treatment. So happy the NETS specialists & radiologists all agree! I will continue to have scans every 3-6 months (MRI, CT, PET) blood work & continue monthly Octreotide injections. Best news I’ve had since being diagnosed in 2022! Feeling so blessed!

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Replies to "PRRT Update: Today I got the absolute best news😁 Had my PRRT follow-up appt with the..."

That is so awesome. Yaaaay for you. Having a good doc team really helps. But most importantly, you put in the work. Through the surgeries, the injections, the discomfort, the pain, the homework, the decision making, and the mental and emotional trauma that comes with all of that, you persevered. That takes unbelievable courage. You should be proud of yourself. So many patients want the pot of gold at the end of the rainbow without doing what they can to survive the storm. I know because I recently lost an old friend who was unwilling to do so. Enjoy your pot of gold. You earned it.