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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 hours ago | Replies (6623)

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Profile picture for dianelow @dianelow

Hello, I'm a new member from Auckland, New Zealand. I've been diagnosed recently with neuropathy that affects my feet and ankles. But really, on reading posts from members, I don't think there's much wrong with me! I have burning and tingling in my feet, weak ankles and a problem with balance. Nothing compared to most of you! I'm trying a magnesium cream after reading posts about magnesium; I go to exercise classes at a physiotherapy clinic to help with balance and I have repurposed my hiking poles to help with going up and down stairs! I find compression socks help my feet enormously, but I have osteoarthritis in both knees and even mid-calf socks seem to cause weakness and pain in one knee. If anyone has a similar problem I'd love to hear how you managed that. I kook forward to being a member of this group. Even though my condition is mild, I'm pleased not to be on my own and to have information, recommendations, and opinions. Thank you!

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Replies to "Hello, I'm a new member from Auckland, New Zealand. I've been diagnosed recently with neuropathy that..."

Hi Diane @dianelow, Welcome to Connect. I have similar symptoms except for the burning. I just have numbness and a little tingling with my small fiber peripheral neuropathy. I normally use magnesium lotion at night also but have tried a multitude of others. The magnesium lotions seems to calm my feet and legs some. Lots of member experience here on Connect and the search function is pretty good if you are looking for a more specific topic. Sounds like you are doing great with the exercise classes. Balance is always a concern for a lot of us. I practice the senior shuffle year around so that I will be ready for the snow and ice when winter comes. 🙃

About the only recommendation I can make that you are probably already doing is to learn as much as you can about the condition and the different treatments that are available and stay active. If you haven't already seen the Foundation for Peripheral Neuropathy, it's a great place to learn more about neuropathy - https://www.foundationforpn.org/living-well/. They also have a YouTube channel with a lot of information webinars - https://www.youtube.com/@foundationforperipheralneu4122.