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lkkelly68 avatar

Searching for answers

Autoimmune Diseases | Last Active: Aug 20 10:04am | Replies (12)

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How do you get answers! I’m so depressed and frustrated. Diagnosed with IBS, Depression and anxiety, migraines, trochleitis , and trigeminal neuropathy. But I have a high RF, hair loss, so far in ‘25 had Covid 5 times, exhaustion, pneumonia, and have seen many specialist, had many tests, many vials, many stool samples, needles and fingers in uncomfortable places. I’m on a number of meds for all of these diagnoses, but they don’t really hep. I don’t think anyone is looking at me as a whole person and I do think this is autoimmune. I’ll bet you’ve gone through this. Can you help me, please?

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Replies to "How do you get answers! I’m so depressed and frustrated. Diagnosed with IBS, Depression and anxiety,..."

Ido, Praying for you right now. I'm wondering if you have Long Covid from having COVID
so many times....it can cause hair loss. I lost so much hair with COVID both times. It did come
back, but it takes time

Personally, I would try and find a COVID Recovery Clinic OR go to an Integrative Medicine
doctor who looks outside the box....this will be out of pocket, but, your insurance will pay
for the bloodwork.

Having a high RF, if you have already seen 1 Rheumatologist, I would see a 2nd one for this.

Blessings & Prayers for you to get answers and feel better. You have a lot on your plate and I am so sorry.

I am so sorry you're going through this. I definitely do understand how you're feeling. Some days I'm still constantly on reputable websites doing research, trying to think outside the box. Other days, I'm like screw it, don't know what's wrong with me, done trying, when I keel over, oh well. And medical gaslighting does happen, on the norm, so there's always that fear.
Just hang in there!