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I have an allergist/immunologist in NYC who knows about MCAS. Actually, my endocrinologist at HSS suspected it because I have such severe reactions to medications and had no idea why. The allergist did blood tests and also sent a 24-hour urine collection to the Mayo Clinic. That's how I got my diagnosis. It's a serious issue for my treatment for osteoporosis.

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Replies to "I have an allergist/immunologist in NYC who knows about MCAS. Actually, my endocrinologist at HSS suspected..."

Oh you are in NYC...I'm just in a rural area with so little access to decent medicine. I have to travel 3 hours to see my endocrinology person. Maybe I'll ask her about that. How do they treat MCAS? I'm having to use 1 click of Tymlos...that is all i can do, 1 every few days. I don't even know if it will help at all. But there haven't been any other drugs I can tolerate.