I hear you LOUD & CLEAR! I am in the same boat & it isn’t a good way to live…It seems as though NO ONE can help you….Why is that???!!! I wish our doctors could experience one day of our agonizing life & then maybe, just maybe they would really try to find some sort of answer to help us…..or perhaps there is no answer…I hope when I die I will go to heaven because this is HELL on earth…..God bless! 🙏