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Pineal Cyst: What symptoms led to your diagnosis?
Brain Tumor | Last Active: Oct 16, 2025 | Replies (63)Comment receiving replies
I am actually very interested in hearing more of the information you have on this myself. You seem very enlightened on the exact breakdown of when to test for what and how to get the best results. I am dealing with a very uneasy thought of possibly having some type of pituitary tumor just not sure exactly what kinds yet. However I am having several weird symptoms that caused me to be tested such as lactation while my youngest child is 6 and I've not breast fed since she was 2 months old. Vision trouble as I see double of most everything And can barely read anything with my contacts and glasses both on. I have majorly lost weight in the past year. Lost any and All motivation to even get out of bed. I hurt all the time and am very weak and fatigued a lot. And don't get me started on the headaches I get every other day. I'm tired of feeling this way all the time and just want to feel like myself again and not this negative Nancy who's calling apart at the seams anymore ya know.
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Those are not so weird symptoms of pituitary problems. The lactation and double vision problems are really key points and if a doctor does not pick these symptoms up, they should go back to college. The average endocrinologist will not easily diagnose. They are trained mostly for diabetes and thyroid issues. Not only do you need blood tests but an MRI (of the head). Pituitary problems/tumors are NOT considered a brain tumor. You need a specialist (endocrinologist and neurologist) specifically with the pituitary. A pituitary tumor is quite serious as if it presses against the optic nerve, one could go blind. For the surgery, the. doctor go win through the nose. My husband ended up being on growth hormone, thyroid and testosterone permanently. He was also put on antidiuretic hormone after the surgery but by some miracle the pituitary was able to regenerate this. Let me know what happens. The Pituitary Clinic at Strong Hospital/Rochester, NY is excellent. Have courage. Please let me know what happens. Susan