I have lived with tarlov cysts in my thoracic and sacral spine for many years.
It did take a long time for doctors to recognize that these are actually a real thing and can cause a lot of debility.
After years of hunting around finally I came across three of the top tarlov cyst neurosurgeons in the United States. One of them just happened to live where I am close to which is Sacramento. He has done many many many tarlov cyst surgeries. It is a complex surgery and personally unless I'm losing my bowel bladder function what I consider it although the cysts are of a size where a surgery could be suggested if other things do not help.
The interesting thing about the doctor that I see is that he's research oriented and often will have all kinds of ideas and stuff you can try although he won't tell you to do it he'll suggest that other people have done it and found whatever it is helpful.
The other doctor I came across in my research with someone in Texas Maybe it's called the spinal institute I forget.
One of the things he did prescribe was low dose naltrexone which often can take several months before it works. It seemed to increase my anxiety which is a challenge already so I didn't stay with it. I would like to try it again and see what happens.
There are times when my balance can be off and I fall . legs and low back will feel very heavy. These things tend to come and go.
I don't know if I'm allowed to recommend a neurosurgeon in here? If I can I will share his name sorry if this seems to ramble I would like to get everything related to each other in one section although for some reason I can't seem to back up to see the other stuff I've already written.
I get facet joint injections with an anesthesiologist and those help me. They don't help everybody. Also I wanted to say about the surgery that it is not something to sneeze at. I'm 66 years old and do I want to put myself through that?
Anyway I wish you good luck and I hope you find some relief. I have good days and bad days and I hope eventually you have more good days than bad!