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Undiagnosed auto immune disease, put on Leflunomide
Autoimmune Diseases | Last Active: Mar 9, 2023 | Replies (96)Comment receiving replies
when you said that yuo had excessive protein in your urine, were the doctors sure you were not goin thru kidney faliure? i had kidney failure in 2002 due to an RA medicine called with massive amounts of protein as well as 43 lbs of water weight gain in 3 weeks. i also had high blood pressure. my kidneys at the time were only 30% effective. had they gone to 20% effective hen i would have been on dialysis. i stopped the RA medicine immediately and once the kidney doctors figured out how to kid my kidneys to work again, then i was sent home and put on 60 mg of lacex every day for a month until all 43 lbs were lost and the kidney tests proved positive. my ct scan of the kidneys while in the hospital revealed normal size. everything is ok today...........kozlo52
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Hi koslow 52. Thanks for posting. No I definitely have immunotactoid glomerulonephritis. They did a kidney biopsy and that's what it came back. I was also seen at Mayo clinic and had three days worth of test run. the doctors here had never heard of it of course since it is extremely rare however Mayo knew right away what it was. I will eventually be in kidney failure that's the end result. Just trying to sustain a longer. Of time before that comes so being very mindful of what I eat and what I do to keep that at Bay. Apparently in past patients lymphatic leukemia has been common with this as well. So for now I just get a blood panel every 3 months 2 monitor my numbers until something happens. Like I said earlier I've done a lot of reading on aryuvedic medicine, body tapping, reishi and herbal medicine.