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Undiagnosed auto immune disease, put on Leflunomide
Autoimmune Diseases | Last Active: Mar 9, 2023 | Replies (96)Comment receiving replies
Hi Lisa Beans. I am not sure if this will help or not hour for the last 10 years I would have swelling stiff joints back ache vertigo high blood pressure all kinds of different symptoms. They ran all kinds of tests on my heart and finally decided that it was lupus. Every year ago when I went in for high blood pressure again and swelling of my legs they found excessive amount of protein in my urine. So we did a biopsy I found you that I do have an extremely rare autoimmune disease called immunotactoid glomerulonephritis. But it took 10 years and one very thorough intern mind you to discover this. Over your symptoms for you sound like lupus to me
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when you said that yuo had excessive protein in your urine, were the doctors sure you were not goin thru kidney faliure? i had kidney failure in 2002 due to an RA medicine called with massive amounts of protein as well as 43 lbs of water weight gain in 3 weeks. i also had high blood pressure. my kidneys at the time were only 30% effective. had they gone to 20% effective hen i would have been on dialysis. i stopped the RA medicine immediately and once the kidney doctors figured out how to kid my kidneys to work again, then i was sent home and put on 60 mg of lacex every day for a month until all 43 lbs were lost and the kidney tests proved positive. my ct scan of the kidneys while in the hospital revealed normal size. everything is ok today...........kozlo52