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Has anyone had migraines which affect vision?

Headache & Migraine | Last Active: Aug 19 2:46pm | Replies (10)

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Mine are called migraine with aura as I see wavy lines or gold rings around my whole eyeballs. Two times all of my vision went bright white and once gray. I feel the prodrome coming on when I get a sharp intense smell or the lines or rings. Depending on how fast it comes on and how strong the pain, means I’ll be in a dark room in bed for days.
When I was younger I took the cheaper Excedrin equivalent, which is caffeine from a coke/coffee/or chocolate, an aspirin and an acetaminophen. Prescription meds made me too dizzy so I was put on gabapentin and vimpat for seizures. They mostly work for migraines but sometimes I have to add a tylenol or a coke and it usually works as I’m already on aspirin for my cholesterol.
None of my doctors over 60 years have known what causes them but I have a lot of other diagnoses so I figure it’s related to my seizures even though they don’t think so. I also have small vessel disease and a lot of migraine scarring in my brain but all my neuros say it’s no big deal. They don’t have migraines lol

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Replies to "Mine are called migraine with aura as I see wavy lines or gold rings around my..."

Sunglatoon, I just got home from check up at eye doctors ( can’t believe I even went! So glad I did). I have similar symptoms as you (mine all left eye) Easiest, trying to see thru Vaseline. Next, larger white splotches. Worst large black coming fast. Look like I got punched. Was worried Doctor knows and said everything eye-wise is fine. I can tell from the aura now how bad to expect. I’ve spent plenty of time in my dark room and I feel for you. No fun.
Never had seizures (once many years ago, my own fault) or small vessel disease. I’ve also never heard of migraine scarring in the brain. This has all hit me so bad so fast I dont know 1/2 of what people here are going thru. It all started like a freight train at 63 for me and I’m 67. All after covid. I couldn’t imagine how difficult growing up with this would be. I don’t have a clue. Concentration is a trigger so I gotta go… thank you for posting. I kept this all pretty much to myself till a couple few weeks ago.