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Intrathecal Pain Pump

Chronic Pain | Last Active: Sep 2 1:29pm | Replies (58)

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All I can say regarding your post is that 2.1mg of dilaudid is still a modest dose. I think the 15% increase provided helped for the short term, but still is not an adequate dose to relieve the level of pain you are feeling. I titrated up to 5mg of dilaudid and I also use 6 blouses per day, it helped quite a bit, but my Dr. also prescribed 4 4mg of oral dilaudid to control my pain. I can say that for the 1st time in my life, I don’t mind waking up each day. I’m not groggy or tired from that dose, but my pain is adequately managed. My point is, to work with your Dr. and see if he’ll continue to work with you and continue to adjust your dose in a slow and controlled manner until you feel better, and am happy. The maximum daily dose is 5mg. But you have a long way to go to reach that level, you probably won’t need that level, but a bit of an increase I think will improve the quality of your life! I hope this helps, be your best advocate.

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Replies to "All I can say regarding your post is that 2.1mg of dilaudid is still a modest..."

I really appreciate your response. Good to hear of you experience with your dosage. I am hoping and praying that as I reach higher levels in my pump I will get some real, lasting relief. I don't need 100% relief at this point. Just enough to become functional. It would be great to be able to wake up each morning without the persistent pain. I am on Tramadol and Gabapentin along with the pump. I don't know if my pain doc would be willing to prescribe oral dilaudid. Slow and steady increases is the way to go with the pump. How many increases did it take you to achieve the 5 mg of Dilaudid? It just takes so long...ten percent every two to three weeks is so frustrating. Again, thanks and hope you have a blessed day.