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@woahitsval

I am a 21 year old female, height 5'5, weight 130. I am relatively active when I am not sick and eat a healthy diet. I have always had a poor immune system. Growing up I caught every virus, infection, etc. and even had shingles by the time I was 11. I have had chicken pox, countless cases of strep throat, bronchitis, walking pneumonia twice, digestive issues, endometriosis, and I get the flu hardcore every season usually multiple times. For the last 4 years I have gotten much sicker than normal, being that every time I get the flu I become hospitalized, I had 3 kidney stones one month after another, and a stomach ulcer. This year in 2019, I started off with a really nasty flu. I got better for 3 days then I got really sick again with walking pneumonia. Now just 3 weeks ago I came down with what I thought was stomach flu, throwing up violently, bad diarrhea, fever, and muscle aches. The doctor said that virus was unlikely due to the length and nature of symptoms and checked my blood, did an ultrasound of my gall bladder, and ordered stool samples to check for parasites. Everything came back normal. She ordered an endoscopy/colonoscopy for next month to check for something like Crohn's disease. By the time my vomiting and diarrhea stopped and I could keep food down, I got better for about a day and a half and then I noticed an intense feeling of fatigue/malaise and body aches. Every day my throat felt more and more sore and was very red and my lymph nodes were swollen so I went to urgent care to check for mono or strep throat. They both came back negative and the doctor gave me a steroid to help with the inflammation. After the steroid my throat felt much better, but the intense body aches were the same. Everyday I became more congested and my ears would hurt, and I would have splitting headaches at the base of my skull. Today is the third week of being sick and I can hardly do anything. OTC medications barely get me through, and I even have been trying accupuncture which helps a little but not a whole lot. I am only on one medication which is a prescription vitamin D supplement for deficiency. Does anyone have any idea what this could be?? From what I have researched it sounds like it could be an autoimmune disease. What do you guys think? Sorry for the long message and thank you!!

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Replies to "I am a 21 year old female, height 5'5, weight 130. I am relatively active when..."

@woahitsval Oh you poor dear so many for so young. Welcome to connect we here care and let you know of our experience.We aren't Dr,s but are caring. Have you seen an Infectious Dr? You didn't say what kind of Dr you are seeing.With the pain I suggest a rheumatologist also .The Dr doesn't have you On any other med.but Vit D. ?Mayo is great at rare diseases Sounds like you should maybe see a University hospital or try Mayo if your close to any.I'm sorry for your problems

Hello @woahitsval, I would like to add my welcome to Connect along with @lioness and other members. I’m sorry to hear you are having a difficult time getting a diagnosis. There is currently another discussion for undiagnosed autoimmune diseases where your post may receive more visibility. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where you can meet other members with similar symptoms.

> Groups > Autoimmune Diseases > Undiagnosed auto immune disease
-- https://connect.mayoclinic.org/discussion/undiagnosed-auto-immune-disease/

I thought this video maybe helpful to let you know you are not alone. What happens when you have a disease doctors can’t diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
-- https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

Have you thought about getting a second opinion? If you would like get a second opinion from Mayo Clinic, you can find the contact information for
the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.

I hate that you are going through this! When you see your doctor next time, request extended bloodwork (IgG, IgA and IgM for example) and a referral to immunology. There are many immune deficiency syndromes that can be detected through bloodwork-if the provider is willing to look. I have found that young age often works against you in this fight. Many, many medical providers (some at Mayo included) can have blunders on when it comes to what conditions someone of a certain age can have. Keep pushing until you get answers. Best of luck to you!