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DiscussionUndiagnosed auto immune disease, put on Leflunomide
Autoimmune Diseases | Last Active: Mar 9, 2023 | Replies (96)Comment receiving replies
Replies to "I am a 21 year old female, height 5'5, weight 130. I am relatively active when..."
Hello @woahitsval, I would like to add my welcome to Connect along with @lioness and other members. I’m sorry to hear you are having a difficult time getting a diagnosis. There is currently another discussion for undiagnosed autoimmune diseases where your post may receive more visibility. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where you can meet other members with similar symptoms.
> Groups > Autoimmune Diseases > Undiagnosed auto immune disease
-- https://connect.mayoclinic.org/discussion/undiagnosed-auto-immune-disease/
I thought this video maybe helpful to let you know you are not alone. What happens when you have a disease doctors can’t diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
-- https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose
Have you thought about getting a second opinion? If you would like get a second opinion from Mayo Clinic, you can find the contact information for
the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.
I hate that you are going through this! When you see your doctor next time, request extended bloodwork (IgG, IgA and IgM for example) and a referral to immunology. There are many immune deficiency syndromes that can be detected through bloodwork-if the provider is willing to look. I have found that young age often works against you in this fight. Many, many medical providers (some at Mayo included) can have blunders on when it comes to what conditions someone of a certain age can have. Keep pushing until you get answers. Best of luck to you!
@woahitsval Oh you poor dear so many for so young. Welcome to connect we here care and let you know of our experience.We aren't Dr,s but are caring. Have you seen an Infectious Dr? You didn't say what kind of Dr you are seeing.With the pain I suggest a rheumatologist also .The Dr doesn't have you On any other med.but Vit D. ?Mayo is great at rare diseases Sounds like you should maybe see a University hospital or try Mayo if your close to any.I'm sorry for your problems