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A horrible sensation deep in my son's brain following Epstein Barr

Brain & Nervous System | Last Active: Aug 18 2:06pm | Replies (3)
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I think this post is too complicated so this is really my question!
Has anyone experienced a deep horrible sensation in the brain or scalp after Epstein Barr virus which has continued for years? We'd be so glad to hear anyone's thoughts about this.

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Replies to "I think this post is too complicated so this is really my question! Has anyone experienced..."
Colleen Young, Connect Director | @colleenyoung | Aug 18 2:06pm

@susana86, thank you for all the details and for distilling your post into a question. It sounds like your son has had top medical care. Managing myalgic encephalomyelitis (ME) is a long and often frustrating journey. It must be so hard to see your son incapcitated like this.

If I'm understanding correctly, the primary concern at the moment is figuring out how to manage the vestibular migraines/headaches. You might find this related discussion helpful:
- Vestibular migraine: What symptoms do you experience? https://connect.mayoclinic.org/discussion/vestibular-migraine/

Is your son seeing a neurologist specializing in migraines?

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