← Return to Intrathecal Pain Pump

Discussion
duckski44 avatar

Intrathecal Pain Pump

Chronic Pain | Last Active: Sep 2 1:29pm | Replies (58)

Comment receiving replies
Profile picture for heisenberg34 @heisenberg34

So interesting to read all your comments regarding your experiences with a pain pump. As I have mentioned several times previously, my pump was implanted after a successful trial by injection with Dilaudid. They started my permanent pump at about the lowest dose possible. After several increases, I had no relief. After moving to new state, I had several more increases with same result...no relief. I started reducing output with thought of having pump removed. After doing some research, I discovered that I may have still been at a low level of drug output. So, I am in the process of going back up on my dosage.

So, here's my new question, fellow pumpers. Last Thursday I had my pump output increased by 15% to about 2.1 mg. I have no idea how that compares to my previous high dosage. Anyway, The next day after taking my afternoon pills and a bolus, I suddenly felt better. Yes, noticeably better! The bottom of my feet didn't hurt when I walked. The backs of my legs didn't hurt so much. I could work out in my shop. I was so excited. I told my wife how I felt. First time in two years that I felt better, not worse. I woke up the next morning after a particularly good night's sleep. Getting out of bed, the pain in my feet had returned. The boluses did not help. Pills did not help, Here I am on Monday with pain all back. I'm trying to figure out what happened. Was the extra 15% boost helping for just a little until my body readjusted and then the pain just overcame the drug. Will I need extra output increases to reach a lasting effect on the pain. To say I am disappointed would be an understatement! I would like to know if any of you have experienced something similar. Or, any helpful suggestions?
Thank you all who share my pain. Only we really know how it feels.

Jump to this post


Replies to "So interesting to read all your comments regarding your experiences with a pain pump. As I..."

I am not on a pump, but I have had this experience multiple times with procedures. One very good day, then back to hell! Frustrating!