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Started Repatha - Side Effects

Heart & Blood Health | Last Active: 1 day ago | Replies (396)

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Cardiologist diagnosed me with CHD (coronary heart disease), but when I tried (many times, many different products and doses) statins, then Repatha with debilitating results (unable to move due to joint pain) my cardiologist said, “if you can’t take statins or Repatha then I have nothing for you.” When I told me Internist, he said, “what’s the good of a low cholesterol number if you can get out of bed?” My Internist sees me as a person.
I have had high cholesterol for decades. My father had heart disease and died of a heart attack at age 85.

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Replies to "Cardiologist diagnosed me with CHD (coronary heart disease), but when I tried (many times, many different..."

I wonder why your cardiologist didn’t try Inclisiran, the siRNA for LDL? Not that I know anything except that the drug is out there.

I wonder whether the high LDL is useful in some way for some people? My cardiologist says no because the brain makes plenty of LDL even when you rid the body of some of it with statins or Repatha. I have low confidence in that explanation.

HomeAgainLA
So sorry your cardiologist reacted that way. That is awful. I am glad your internist reacted more compassionately.

I am sorry your father dealt with heart disease and died of a heart attack. It sounds like he did live a pretty long life. My dad died right before his 89th birthday, but it was not from heart attack, although he did have stents and bypasses earlier.

Good luck with whatever you try next and I hope you find something that works for you!

@llynch17056 One shot of Repatha next morning every joint in my body hurt - much worse than muscle pain from two statins! Hospital for 2 wks on morphine for pain, could not stand or walk then wks in rehab detoxing from it! Right leg swollen with edema took 2 months to detox! No 2 nd shot for me!