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Ehlers Danlos Syndrome: Can't get diagnosed

Chronic Pain | Last Active: Oct 19 2:34pm | Replies (20)

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I went to the male clinic about 12 years ago maybe 13 years ago in Phoenix Arizona and they diagnosed me with pots and low blood count and they missed a EDS for me so I wasn’t very impressed with them. I guess now they said I had low blood count, white blood cells, and I had pot, but they never thought of EDS at that time they did say I did have stuff wrong with my heart like a PFO and I had a micro valve prolapse and I had the very irregular heartbeat but maybe because of that they were thinking of EDS I don’t know, but it was OK but it was it What I thought the clinic was. I hope you have better luck at the Mayo Clinic or if you want, you could try Jill Scott field up here number.

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Replies to "I went to the male clinic about 12 years ago maybe 13 years ago in Phoenix..."

Thank you ! She has irregular heartbeat also from time to time . Who is Jill Scott ?