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DiscussionEhlers Danlos Syndrome: Can't get diagnosed
Chronic Pain | Last Active: Oct 19 2:34pm | Replies (20)Comment receiving replies
Replies to "We live near Portland , Oregon , and here we have Oregon Health Sciences University ...."
I went to the male clinic about 12 years ago maybe 13 years ago in Phoenix Arizona and they diagnosed me with pots and low blood count and they missed a EDS for me so I wasn’t very impressed with them. I guess now they said I had low blood count, white blood cells, and I had pot, but they never thought of EDS at that time they did say I did have stuff wrong with my heart like a PFO and I had a micro valve prolapse and I had the very irregular heartbeat but maybe because of that they were thinking of EDS I don’t know, but it was OK but it was it What I thought the clinic was. I hope you have better luck at the Mayo Clinic or if you want, you could try Jill Scott field up here number.
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There is one doctor in Denver. I believe she’s in the Cherry Creek area in Denver area. Her name is Dr. Jill Schofield. She does not take insurance. She is cash only she does deal with EDS and a whole bunch of other stuff. She’s a good doctor if you have the money she has the time and she’s in Cherry Creek in her. Her name is Jill Schofield and she’s a really good doctor. She first diagnosed me with it and then I want to when she was at UCHealth and then they dismissed what she said about 10 years ago uchcoming back to what day but she is saying.
There’s one doctor that I am saying and then orthopedic Of The Rockies said I probably had It take me serious and dirt out of UCHealth and then I saw a doctor at St. Luke’s up in the Denver area. That is really good too Sequence of MD for Genetics.