← Return to Polymyalia Rheumatica

Discussion
havana avatar

Polymyalia Rheumatica

Polymyalgia Rheumatica (PMR) | Last Active: Aug 21 4:56pm | Replies (12)

Comment receiving replies
Profile picture for John, Volunteer Mentor @johnbishop

Hello @havana, Welcome to Connect. PMR can definitely be a challenge doing some of the things we take for granted in our normal daily lives. If you haven't already seen this discussion, it might be helpful:
-- Comprehensive Overview Of PMR: https://connect.mayoclinic.org/discussion/comprehensive-overview-of-pmr/

My PMR has been in remission for a little over six years now for the second time but both times it was active I was started at 20 mg prednisone and was pretty much pain free after a few hours of taking the first dose until the next morning. My pain level when I woke up in the morning was generally about a 1 or 2 on a scale of 1 to 10 and went away again after taking my next dose. Another discussion you might find helpful for tapering off of prednisone:
-- How to Slowly and Safely Taper Off Prednisone but ... no set rules.
https://connect.mayoclinic.org/discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules/
You mentioned you are new to PMR and currently at 15 mg tapering to 12.5 next week. Did you start at 15 mg? How long have you been on prednisone?

Jump to this post


Replies to "Hello @havana, Welcome to Connect. PMR can definitely be a challenge doing some of the things..."

Hello , I started on 15mg nearly 4 weeks ago after being diagnosed.
My specialist advised me to cut back to 12.5 after 4 weeks which is next Friday.