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Undiagnosed auto immune disease, put on Leflunomide
Autoimmune Diseases | Last Active: Mar 9, 2023 | Replies (96)Comment receiving replies
@lisabeans You are dealing with a lot of different issues and I'm sure that it is distressing not to have any real answers or plan of treatment. The question that @kanaazpereira asked (time of the day when the dizziness is at it's worst) is a good question to consider. Have you ever kept a journal of your symptoms? Even just noting the day and time of the dizziness and what you were doing at the time might be helpful. It sounds like you already have a lot of specialists, however, consulting with an ENT might also be a good idea. When I was dealing with vertigo, I began to notice that bending down a lot increased the vertigo, but not until the following day. Give the journal idea a try and see if you can pick up any patterns regarding the symptom. You certainly have a lot of on your plate right now and I wish you well as you work through these medical issues. Best wishes. Teresa
Replies to "@lisabeans You are dealing with a lot of different issues and I'm sure that it is..."
Hi @lisabeans, It sounds as if you are taking a great approach to tracking down the source of your problems. Have you had any MRIs of your neck/head? You mentioned that the more active you get the worse the dizziness is, have you ever been evaluated by a cardiologist? That might be a good idea as well. You do not mention your age of other meds you might be taking, however, there are so many reasons for dizziness/vertigo symptoms. It is a puzzle and one that often takes a lot of time. Keep in touch~ Teresa
Thanks Teresa. I have not had an mri or anything yet. I am taking allegra and singualr for allergies. I take align probiotic. My doctor game melizine for the dizziness and amitriptyline to prevent the migraines. I am taking Leflunomide for the inflammatory issues as well. My primary went through my list and did not think it was medicine induced especially since the dizziness started prior to starting leflunomide. I did have echo cardiogram done to see why my feet keep swelling and it was normal. I go back to my rhuemy and primary next week. I am changing rheumotologist but can't see him until May.
@lisabeans I'm glad to hear that you and your doc are looking at many different areas, that is good. A closer look at the head/neck might be a good next step along with the ENT. My ENT did an MRI of the head to check for the possibility of a tumor near the ear area and it was clear. The anti-vert med you are taking is a good one. I keep it on hand, especially when traveling. I was in a revolving restaurant one time when traveling and the next morning woke up with the world spinning and I was glad to have the anti-vert in my suitcase. Keep in touch as we will be concerned about you. Teresa
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Thank you. My dizziness definitely gets worse by bending down or moving my head left to right. It also gets bad if I am around flourscent lights too long. I go back to my primary soon for more testing. I will ask about an ent. I just started to journal everything since we have to journal my husbands stuff. Seems like the more active I am, the worse the dizziness is.