← Return to Living with long-term bowel side effects post anal cancer treatment

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You bring up something else that, thankfully, I worry less about now, though as you mentioned, it was a concern for me in the beginning too. I used to think that having no real change in bowel movements, or the frequent mucous soiling in my underwear, meant the cancer wasn’t fully gone. Learning that this isn’t the case has been such a relief. In a strange way, I’ve even found it fascinating how the body adapts and, as you said, how fecal matter keeps adjusting its size and consistency so it can pass through my radiated anus. I’m truly glad you didn’t wait as long as I did to seek out support, because in just a matter of days I already feel understood and like a huge weight has been lifted. Family can only understand so much, and my partner often phrases things in a way that makes it sound like I’m at fault—for not trying this or that, for eating this or that, or for not doing something differently. When he doesn’t understand that all of this is beyond my control, I end up speaking less about it, and that silence builds into frustration and resentment.

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@gavid I loved your response about how fascinating the post radiation colon is as it heals or adapts to damage. Managing the changes can be a struggle and self-esteem certainly takes a big hit. Lomotil works super well along with Metamucil to slow things down and make (for me) at least a few days a week worry free for travel and outings. I keep a record of food, medication, exercise and “results”. The scientific approach gives me a sense of control and makes my anal cancer experience more interesting and less of a pain in the ass!