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Vulvar Cancer: Anyone else?

Gynecologic Cancers | Last Active: Sep 24 11:31am | Replies (211)

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Clobetasol propionate 0.05%?

I have lichen sclerosus & have had laser ablation, then excision of a smaller area, now trying to address current lesions with Imiquimod ("Aldara") cream per my gynecologic Oncologist...which, if it doesn't reduce/ remove them means further excision.

There is a lichen sclerosus support group online that has Zoom calls every Saturday.

As I've researched it on my own, (& having been diagnosed with LS ~45 years ago), LS & VIN II/III (Vaginal Intraepithelial Neoplasia) - the precancerous condition I've been diagnosed with - are more common than we as patients know or are educated to watch for.

Fortunately I've had good (well-informed) gynecologists along the way.

It's still strange to me that the cause remains unknown.

Let me know if I might be of any further assistance.

Best wishes.

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Replies to "Clobetasol propionate 0.05%? I have lichen sclerosus & have had laser ablation, then excision of a..."

I have read recently from several sources that Hashimoto’s and vitiligo (both autoimmune conditions) may lead to LS which can then lead to vulvar cancer. Interesting to know if anyone out there has found that link.

Would definitely be interested in that zoom meeting. I have a wonderful team as well. I’m shocked at the lack of progression with this. I’m am greatful to be alive as well but what a constant watch