I understand your frustration. I have good days and bad. I can have burning and itching with pain throughout however, I have found something that works. We have a Toto washlette that sprays water over the area but that doesn’t always help. Urine can be pretty painful. I purchased through Amazon cleansing wipes called Theraworx that have a low ph factor and are very soothing. They are not cheap but I notice a big difference when I use them. I showed my radiologist and she has seen them used in the hospital. Toilet paper has chemicals that can burn the vulva. My doctor prescribed both Estradiol Vaginal cream and Premarin which I use daily after showering. In the morning and evening I slather on Triamcinolone Acetinide which is a cortisone cream base of light mineral oil and white petrolatum. This acts as a barrier of sorts. The above requires a prescription so I recommend discussing with your doctor. I have lichen schloros which lead to the vulvar cancer and I have used cortisone for years however, the estrogen creams are new to me. I have read that most women would benefit from using them. I have also used lidocaine which also helps but find I don’t need it as much.

I hope that you can find some relief. Vulvar cancer is rarity and I believe doctor’s don’t have a lot of information on how to treat it. It is important for us to share with others things that help improve our life. I wasn’t prepared to have these late effects from chemo/radiation. I am adjusting to it being my new norm but thankful that I am alive to do so. I hope that my suggestions can be a help to you.