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Pineal Cyst: What symptoms led to your diagnosis?

Brain Tumor | Last Active: Oct 16, 2025 | Replies (63)

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Profile picture for Colleen Young, Connect Director @colleenyoung

@moecavicchi, as a parent, it must be so hard to see your son suffer with headaches and other symptoms that affect his quality of life.

I'm tagging a few members who have experience with pineal cysts like @bucsfan22 @sungaltoo @jenndustin @golfguy2282 @elsk @susanaz, some of who also manage headaches and other symptoms.

What has the neurologist suggested might be the cause of the headaches?

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Replies to "@moecavicchi, as a parent, it must be so hard to see your son suffer with headaches..."

They did not give any reason but have tried many diff medications with no benefit.
I wondered about spinal fluid leak causing low pressure? Because he feels better lying flat but neurologist doesnt think so.