← Return to Diagnosed with Ameloblastoma

Discussion
caw avatar

Diagnosed with Ameloblastoma

Head & Neck Cancer | Last Active: Sep 10 7:47am | Replies (287)

Comment receiving replies
Profile picture for ssalava @ssalava

Thank you for this @tomschwerdt. Doctors Arce/Ettinger removed a maxillary ameloblastoma in my right sinus cavity, via FFF, in July 2021. While I have no proof/evidence, I believe the ameloblastoma tumor was triggered by the extraction of Tooth #3 (6 year molar) in January 2015. The tumor was first discovered during a pituitary gland MRI and subsequently removed (the first time) by my ENT in June 2020.

Now separately, I am facing root resorption in Tooth #30 (also 6 year molar), directly below my Tooth #3. My dentist and endodontist have recommended extraction as the only option once #30 becomes problematic. Right now, I am not in pain and only aware of the resorption when I brush my teeth back there (no pain, just a slight "ting"?). I usually eat on the left side of my mouth because of the prosthetic appliance (Dr. Muller in Mayo's Dental Specialties) so #30 is not a problem...yet.

Given my prior Ameloblastoma tumor, I have inquired about genetic testing as referenced here: https://www.mayocliniclabs.com/test-catalog/overview/608305 and here:
https://news.mayocliniclabs.com/2018/08/21/neuroonc-cases/ when I am in Rochester in a couple of weeks from now.

Has anyone else pursued genetic testing related to ameloblastoma propensities?

Jump to this post


Replies to "Thank you for this @tomschwerdt. Doctors Arce/Ettinger removed a maxillary ameloblastoma in my right sinus cavity,..."

Hey, sorry to hear of your difficulties. We've discussed the genetic testing across a few different Ameloblastoma threads.