I am so sorry to hear about your struggle with post treatment side effects. I also am an anal cancer survivor (2020) and experience incontinence issues. I know some survivors who have had long term diarrhea and they have used Lomotil to control it so they can go out and about. Perhaps this would help if you haven’t tried it as of yet. The Anal Cancer Foundation is having a virtual anal cancer patient summit on October 18 to connect thrivers, caregivers and experts. You might be able to get some answers there. Also, when I started treatment there was a diarrhea management video transcript from MD Anderson Cancer Center that I printed out. Type in “Treating Diarrhea Video Transcript” and it should come up. It might have some useful info. I know this seems like a lonely road but there are a lot of us walking with you. I hope this helps.