Thanks for reply. I ama retired RN, over 40 years. I am Medicare & Medicaid. I have not been able to get anyone to even look at Dr Tennant's protocols. You have no idea, the lengths i've gone. I am broke....cannot pay cash & inflammation so severe, cant sit up, barely move. With hardware from C3 thru sacrum. I'm not able to do most everything...Feels like all my hardware is inflamed, i don't bend...( used to be an avid gym rat. Tried to avoid getting this bad. They just want to dump me into a nursing home.. Hospital told me pain is not their problem. Tried to get off the Decadron, but pain so severe. Only thing hospital cared about, was removing my order for IV pain control. They were basically horrible. I did not keep asking for stuff and told them this temporary... See a neurology PA this AM, Not optimistic a

Impossible to get appointments here. Current neurologist, very nice. But he keeps saying there is no treatment except steroids. I was bringing Dr Tennant's hand outs Most sleep i've gotten is 3 hours & can't nap I am not a surgical candidate,..was at the Barrows. I have gabapentin & have been on other drugs, for neuropathy. I am disoriented from lack sleep. I am all alone. Have part time caregiver...but i asked for more. Can't even sit up. Cauda equina not affected. I don't drive & am now basically total mess. I asked for 5 valiums. DO not respond to regular muscle relaxants Barrows is worlds renowned. All they did was prescribe more & more of the wrong type of steroids. PT is coming, but the spasticity is so severe. I know not much they can do. Think i've got to address the severe inflammation. Don't mean to sound argumentative, but so exhausted....just trying to keep clean & avoid another drug resistant infection. I have a permanent suprapubic catheter, which keeps getting colonized. Medical situation, horrible here in AZ. been told that taking out hardware, is not going happen. Plus, CT myleogram, did not show much of anything. Hospital treated the UTI & got me an ambulatory referral for 6 months away. Pain management doesn't have much to offer, at my advanced state. Spending hours just trying to keep clean and not make UTI worse with contamination. Just wanted input on specifics to try control horrible inflammation. I have no life & am very depressed. Basically have lie on my back. Unable to even turn on my side, or sit up to do anything on the computer.... Not sure if PT can treat, unless this spasticity decreases. Lack of sleep is compounding things. PT in the hospital, said i need .to get where they can even try to move me I am kind of a pariah with all my hardware & a DX that no one will deal with Can't get an IV in, no veings left & looking at a pic line.

Thanks for responding. I have seen multiple doctors. My PCP is now managing the steroids. No neuro appointments in AZ, 6 month wait. Have had at least 6 different PCP & not one willing to look at Dr Tennant's protocols. Over & over, just tell me nothing but Steroids. I even printed up Dr Tennent's information & asked them to please read . I have had adhesive Arachnoiditis for long time. Was in a wheelchair for 6 years. I wanted to walk again, so they put hardware (cages, screws etc) fused cervical thru sacrum ( have 4 levels that are not fused, total. I cannot sleep with my current Decadron usage. getting 3 hours a night & not able to nap. Very jittery. As of now, still having severe inflammation. Can feel every level of my hardware, feels on fire. While in the hospital, pain mgt was basically refused. Have taken Gabapentin, cannot handle Lyrica & my kidney function is squat. I am to sick to go anywhere. Yesterday, i did go see a different pain doctor, who read me the riot act. I had been with same pain management for over 12 years. They offer nothing, but pain pills. So i went to a different pain place & was basically accused of every illegal thing that one can do with prescription narcotics. I have never once, caused a problem with my narcotics. I was put in my place. Have been in & out of hospital for drug resistant UTI. Have permanent suprapubic, as i was paralyzed with MRSA & destroyed my bladder. So i have a neurogenic bladder Been told by Barrows, that i am not a surgical candidate & nothing but steroids for me. Another CT Myleogram last week, and nothing wrong with my spine, nothing to fix I am a senior & cannot take a lot of medications, as my kidney function (creatinine clearance is poor) Sorry for all the typos etc... I can't see straight, from lack of sleep Will try & find some psych help. I now poor & on Medicare & Medicaid. I am too sick to go anywhere, can't drive, so i take Uber. No one willing to help with pain issue. I am worried about getting C Diff, from antibiotics. I was begging for some IV pain relief, while hospitalized. An order was written & then rescinded over 8 times. They seem to think that pain Mgt was going to solve my problem. New pain doc, said maybe a caudal epidural (after some of this inflammation goes away). Arachnoiditis is all the way up to my arm pits & i am very Leary of any more needles in my spine. I am so depressed about the treatment i've received & the lousy attitudes from all the docs. Not one drop of empathy & kept telling me No IV pain meds. Started hallucinating from sleep deprivation. As a former RN, i am not naive about current state of health care today. I have never been part of the opioid crisis & no abuse what's' so ever. Please, as a warning, be careful about what you take. I was never informed that i could get so sick & end up totally disabled. All my education, has not helped me. Current PCP, is very nice & responsive I should clarify, that i've been on oral pain meds, for so long, that they don't work, any more & was begging for some Dilaudid while in the hospital. The pain was extreme. Doctors only concern, was no pain relief I didn't bring it up, but every hospitalist, but one, took order for the Dilaudid away. The Opioid crisis has destroyed pain treatment for some one like me I know there are others, receiving adequate pain management. The pain has only gotten so severe, with my recent flare. Had a hospitalist walk in & no introduction. He just informed me that he was taking order away for IV pain meds. He told me i had no reason to be in pain. He admitted to knowing nothing about AA & having never even treated it before.