xavier99:
Have you been tested for lyme disease?
Did you fall & sustained a concussion? How long ago does not matter.
The fact it improves when laying down...you can have a CSF "leak" (very small) in your brain.
If this is so, laying down always makes one feel better. It can be missed on MRIs/CT Scans.
You would need a spinal tap to check for a "leak".
Are you suffering from anxiety? Anxiety and stress are the culprits in so many health issues and it can present itself in so many ways - often weird ways...one would never think it was anxiety.
Can you identify a "trigger" that started this?
Could it be migraines?
I am guessing you are seeing a neurologist. How about a headache specialist?
A neurologist is not always a headache specialist.
Do you have access to a top notch facilityies for neurology?
If not, look at the rankings on World News & World Report for the best facilities. Google it.
Do you have small vessel disease in your brain? The MRI should have showed this... or areas of "hyperintensities"? that means areas of no blood flow...which can cause everything you mentioned.
Again, the MRI should have showed this...did you have IV contrast?
An examination with an opthalmologist?
Rheumatologist for fibromyalgia?
In short, there are a multitude of medical and psychological conditions that can be responsible for your ongoing head pressure.
As difficult as it may be, you must start "ruling" health issues out to try to find the cause.
Wishing you the very best on this journey. It's not easy for sure.