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← Return to MAC with sinus issues
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I hope you tolerate Dupixent too, and see some improvements.
Currently I am using 0.9% sodium chloride. My pulmonologist called me Friday, and she is open to trying the saline. I will ask the ID doctor tomorrow. Which do you prefer….3 or 7%, do you think it is helpful?
Thank you for the additional information and tagging other people on this group. I did watch the BE YouTube in July, helpful information.
I am a positive person but I have to admit that this MAC diagnosis is very challenging. It is definitely life changing for me. I am 67 years old, stay active, and have a busy social life. Will see how tomorrow goes.
Have a great day!
Replies to "I hope you tolerate Dupixent too, and see some improvements. Currently I am using 0.9% sodium..."
@janetannfaust, you've received great advice from @pacathy @sueinmn and others to help you prepare for your appointment with the infectious diseases specialist this week.
If you scroll to the bottom of each of these links, you'll see a list of questions to ask your doctor and how to prepare for your appointment.
- Infectious diseases https://www.mayoclinic.org/diseases-conditions/infectious-diseases/diagnosis-treatment/drc-20351179
- Chronic sinusitis https://www.mayoclinic.org/diseases-conditions/chronic-sinusitis/diagnosis-treatment/drc-20351667
I'm sure you have most of the questions already noted, but just in case. 🙂
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It will be interesting to hear what the ID doc would like you to do. It seems that many specialists are open to "watch and wait" - having you do airway clearance twice daily and monitoring via sputum culture and CT scans to see if the infection is decreasing, stable or increasing.
With you added issues with sinuses, the docs may want to be more aggressive in treating. Or if your CT scans show cavities or large nodules (both evidence of higher level of infection.)
As for the saline, if you have a confirmed infection, 7% may be more beneficial. NTM bacteria have a very hard time surviving/multiplying in the higher salinity. It can be hard to tolerate at first, so mixing .9% and 7% half and half can help you get accustomed.