Complex Regional Pain Syndrome
I have just been diagnosed with CRPS after a contusion to my heel bone that happened December 8, 2024. Since then I’ve seen numerous specialist. Running test after test on me. Sending me to physical therapy. Latest test was today, vascular Doppler, which came back normal. My foot at first was red, warm to touch and very swollen. After 8 days of that, December 16th, I noticed my foot was ice cold, burning, and almost had a purple/blue tint to it. Ever since then it’s become increasingly worse. The pain in my foot as now moved to my thigh. I forgot to mention I also have a 1.3cm hip labral tear with this contusion to my heel bone. I’m new to all of this. I don’t have many family members alive, the ones I do have don’t believe me. It’s exhausting. Oh, also, sorry I’m everywhere. I broke my wrist in 6th grade and had to have it desensitized and when I told the doctor this, his response was “hmm that’s so odd” so, what helps with the flares? Im on Gabapentin 900mg x3 daily and that’s not seeming to help anymore. I’m scheduled with pain management April 20 something. I’m needing support and encouragement. This is such a painstaking process to go through. The pain just keeps getting worse and my foot is ice cold most of the time.
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It is not covered by insurance unfortunately. There are components of the treatment (chiropractic, certain types of PT, etc) that may be covered by your insurance, but you have to file it yourself. The program has great success rates for CRPS, but it can be very expensive.
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1 ReactionHonestly I can't tell you how relieved I am. After doing extensive research I would urge everyone thats currently diagnosed with CRPS to get a second opinion asap!
60% of CRPS patients are misdiagnosed!
Thank you for helping me . x
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2 ReactionsThis is a fantastic reply! thank you!
You might try aloe vera gel for the burning pain. Also magnesium 100mg. tablets, but chelated one so it does not hurt the stomach. Solgar chelated magnesium 100 tablets. Ask your md if you can take at least 3 a day. I had shingles for 6 years on my buttocks which left me with crps. I tried it all,
Also terrasil shingles skincare ointment. It is homeopathic, it is around $30 a small tube but you can get it for less on ebay. It also helped me tremendously, I was sitting on ice for 6 years, but it soothed it, but 10 minutes later came back woth a vengenance. So now I put hourly on the aloe vera gel, and swithc off to the terrasil, and the magnesium.They think now it has spread to my spine so you cant sit, lay , stand, a freaking nightmare. But I stood 8 years with very minimal burning until now. It seems any injury to a bone , joint ,muscle, ligament can trigger this off. Also a lot vitamin C. to boost the immune system.I pray for a speedy recovery. You are not alone.Karel
I was diagnosed with crps in 2022. From a fall that happened in a store. I have learned about crps since I was diagnosed. There's no cure for crps. This is a neurological disease. They found this diagnosed way back in the war. When soliders was on the battle front,and lost a limb or was seriously injured. Back then they they didn't know the cause of this disease. When I was diagnosed with this crps I became very depressed. Due to the fact i couldn't no longer nor finish school. Due to the pain being so horrible. I tore my tendons and other ligaments in my ankle and that's how I was diagnosed with crps. Now crps can go into remission like cancer,but it will always come back. Some people had the opportunity for crps too go away completely,but others like myself didn't. My crps progress pretty rapidly since 2022. I'm left handed dominated,so it is very hard for me too write sometimes because of crps it cause very serious pain to the point I have too put on my h-wave machine ony left arm. I drop things constantly. And this is due to my crps.crps effects your muscle function it weakens, because we loose the sensor part of the function in are brain that tells our muscle too function. It also has effected my left side of my face. I have pain issues on my left side as well as dry eye and vision problems on the left like more lile blurred vision. I fall alot because of my muscles weakening. My crps is now traveling too my good side. I'm still able too walk with a cane. But at times if I'm weak on other days I do have too use my scooter. Now crps does travel too your good from the effected area. It could or it could not in your case. But mines did. Crps is different in all cases it depends on the person. I do get injections on I'm on 18 different meds for my crps along with a muscle relaxer for pain prn. Back in the war 0ne days. They called thus disease the suicide disease
The reason I'm telling you this is it came a long way. Of controlling the pain. Back then they didn't know what crps was or how it started
But now they know its neurological. There our different treatments you can try infusion therapy. Injections, a stimulator in your back very small. It sends wave singles through your nerves when your pain level rises. For my 🥶 and heat and biometrics level raises or drops triggers my pain quickly. And certain clothes as well for me. So I hope this information helps you. O and I'm on gaped. Along with 90mg of cymbalta now cymbalta is a depression med but it is also used too help with pain. I'm also on voltarn pills 75mg and the cream with patches and prailcane and lidocaine mix cream. Numbing cream. If your not on any of these ask your doctor,too try them on you. I hope this information helps you. If you need anymore questions reach out.also we have a crps walk in every state in November. Too support our disease. Resources our out there. Read up on it. Everybody body different. And we react too things differently. And just because mines traveled and progress doesn't mean yours will. Stay positive don't stress it triggers the crps. And try seamoss,and soursop tea. Be strong.
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3 ReactionsFor those with CRPS I can heartily recommend the Spero Clinic in Fayetteville AR, they have a successful program.
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