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← Return to MAC with sinus issues
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I'm glad you are tolerating the Dupixent.
It sounds like you've found providers you are comfortable with and that is important.
I've had bronchiectasis for 3 years. I was thought to have MAC based on CT's, but went to MAYO after a few months to get a diagnosis and plan and the bronchoscopy cultures were negative. Lucky! I'm was able to get into Penn and am followed there-lucky again.
Question-are you using hypertonic saline-3 or 7%? That can help with sputum production as can exercise.
I'm going to tag @colleenyoung. a moderator, who might know resources for your sinus issues.
I'm also going to tag @sueinmn, a mentor who might help with MAC questions. Sometimes we miss new questions on threads already started.
I'll also share this link on airway clearance by Pamela McShane, an expert in bronchiectasis and MAC.
https://m.youtube.com/watch?v=VEYK67nld_o
Good luck! Let us know how appt goes.
Replies to "I'm glad you are tolerating the Dupixent. It sounds like you've found providers you are comfortable..."
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I hope you tolerate Dupixent too, and see some improvements.
Currently I am using 0.9% sodium chloride. My pulmonologist called me Friday, and she is open to trying the saline. I will ask the ID doctor tomorrow. Which do you prefer….3 or 7%, do you think it is helpful?
Thank you for the additional information and tagging other people on this group. I did watch the BE YouTube in July, helpful information.
I am a positive person but I have to admit that this MAC diagnosis is very challenging. It is definitely life changing for me. I am 67 years old, stay active, and have a busy social life. Will see how tomorrow goes.
Have a great day!