← Return to MAC with sinus issues

Discussion
pamelasc avatar

MAC with sinus issues

MAC & Bronchiectasis | Last Active: 8 hours ago | Replies (20)

Comment receiving replies
Profile picture for janetannfaust @janetannfaust

Thank you for your response. Yes, I was diagnosed with Bronchiectasis(BE) in 2022 and CT scans regularly depending on the results.

My most recent pulmonologist prescribed the Dupixient to help prevent the regrowth of polyps. My Rhinologist had suggested it too. I really haven’t experienced any side effects, maybe a slight increase with my sense of smell. The injection is a little painful but over within seconds. That is encouraging if it can show improvement with BE.

I live in Ohio and was referred to my current pulmonologist with Ohio State University Wexner Medical Center this year. She is very experienced with BE and collaborates with their Infectious Disease group. After my bronchoscopy in June, my doctor ordered the vibrating vest and increased my nebulizer treatments to twice a day, same as vest. I’ve been trying to do airway clearance and my mucus seems to have increased after weeks of the vest. I do have difficulty bringing up mucus for a sputum sample. My pulmonologist has recommended postural drainage positions and I’m trying that too.

How long have you been dealing with MAC/BE? Thanks again for your thoughtful comments.

My first ID appointment is Monday, please share anything that you feel is important for me to discuss or ask about. I have my list started. Take care.

Jump to this post


Replies to "Thank you for your response. Yes, I was diagnosed with Bronchiectasis(BE) in 2022 and CT scans..."

I'm glad you are tolerating the Dupixent.
It sounds like you've found providers you are comfortable with and that is important.
I've had bronchiectasis for 3 years. I was thought to have MAC based on CT's, but went to MAYO after a few months to get a diagnosis and plan and the bronchoscopy cultures were negative. Lucky! I'm was able to get into Penn and am followed there-lucky again.
Question-are you using hypertonic saline-3 or 7%? That can help with sputum production as can exercise.
I'm going to tag @colleenyoung. a moderator, who might know resources for your sinus issues.
I'm also going to tag @sueinmn, a mentor who might help with MAC questions. Sometimes we miss new questions on threads already started.
I'll also share this link on airway clearance by Pamela McShane, an expert in bronchiectasis and MAC.
https://m.youtube.com/watch?v=VEYK67nld_o
Good luck! Let us know how appt goes.